Program Named for Hunter Kelly
The National Institutes of Health on Monday announced the establishment of a research program to enhance newborn screening, in memory of the son of National Football League Pro Football Hall of Fame quarterback Jim Kelly.
Hunter Kelly died in 2005 at age 8 1/2 of Krabbe disease, a rare, fatal genetic disorder affecting the nervous system.
After Hunter's diagnosis in 1997, the Kellys and their family members established the Hunter's Hope Foundation to raise awareness and fund research for Krabbe disease and related disorders (known as leukodystrophies), and to support families affected by these conditions. Jim Kelly said that the principal focus of the Hunter Kelly Foundation is to educate and advocate for expanded and universal newborn screening for all possible diseases
For more on this story, go to the National Institutes of Health.
Hunter Kelly died in 2005 at age 8 1/2 of Krabbe disease, a rare, fatal genetic disorder affecting the nervous system.
After Hunter's diagnosis in 1997, the Kellys and their family members established the Hunter's Hope Foundation to raise awareness and fund research for Krabbe disease and related disorders (known as leukodystrophies), and to support families affected by these conditions. Jim Kelly said that the principal focus of the Hunter Kelly Foundation is to educate and advocate for expanded and universal newborn screening for all possible diseases
For more on this story, go to the National Institutes of Health.
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