Hunter Kelly Research Progam at NIH Approved by House

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The House has passed a bill approving $45 million to help states expand newborn screening programs. The bill's sponsor, Senator Chris Dodd of Connecticut, held a news conference with Senator Hillary Clinton and former Buffalo Bills quarterback Jim Kelly to promote the legislation. Dodd said that with passage of the bill, we're another step closer to ensuring that every baby born in the U.S. will be tested for a full panel of genetic and metabolic disorders. The bill also creates the Hunter Kelly research program at the National Institutes of Health. Kelly's son, Hunter, died 2 1/2 years ago of Krabbe disease, an inherited degenerative disorder of the nervous system. About 4,000 babies are identified and treated every year for conditions that could threaten their lives or health.
Photo Courtesy of The Hunter's Hope Foundation.

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